JULY 29TH

Brendan and I did get to Kung Fu Panda together. We went on a school day and shared the cinema with 3 other people. Afterwards we had a look at toys in Target. It was really nice to get out together and do something that was fun.

Last Friday Brendan was admitted back into hospital as he had a fever and was feeling unwell and not eating. Today is Tuesday and nothing has really improved. He has high temperatures and bad migraine headaches. Today he had another line placed into an arm vein. This is called a pic line and lasts about 6 months. Brendan has become very anxious about blood tests and has had several botched attempts at cannulas in his arms. He is finding it more and more difficult to deal with invasive tests. He is also finding it difficult when doctors tell him one thing and then change their minds and do another, or the situation changes and he needs to have tests done that were not required the day before. Everyone needs reminding that he is only 6 years old and sees the world in black and white. The pic line in his arm will elevate a lot of these problems as he can have his blood tests and be given fluids through the pic line.

The staff on the ward have been kind to us and given us a room with a view over a park, which they know I love. You can open sliding doors and let the sounds and smells of the local area into your room. It also means you have more control over the room's temperature.

For now we will wait to see what the tests results show us. Tomorrow Brendan will have a CT scan to check his body for any inflammation. It's hard to believe that less than a week ago we started talking about sending Brendan going back to school part time. That is still a little way off at the moment.

Hopefully the docs will find something soon and we can get our little man home and feeling better soon.

Love to everyone Anna