HOME SINCE FRIDAY

DAY 104

Brendan and I have had 4 blissful nights sleep in our own home. Friday was quite a day. It took the day to prepare us for discharge and we left the hospital with a car full of medical eqipment. Everything seems to come in huge boxes. We had a quiet but happy and healthy weekend at home. Brendan's SA grandparents came to visit and life felt more relaxed than it has for some time. Brendan has been enjoying home cooked meals and his appetite is slowly increasing. For the moment Brendan and I will visit the hospital Monday, Wednesday and Friday. Hopefully, by Friday, he will no longer require IV drugs so our visits will be shorter rather than whole days. Everyone has commented how well Brendan looks considering what he has been through. He still badly needs some meat on his bones. He looks so tiny and fragile but he does have his big shiny brown eyes back.

Tomorrow Brendan will have another bone marrow biopsy to check to see how his marrow is progressing. It will also help to tell us which cord was the one that become his marrow. It will also tell us how healthy the marrow is. Brendan has started to reduce his anti-rejection drugs. Hopefully we won't get any late rejection problems.

Brendan and I are enjoying a day at home not doing anything much. It has been a long time since we have been able to do nothing in our own home.

Cheers from Anna