DAY 50

It’s hard to believe that we have been living in the same room for so long. Brendan’s blood counts continue to rise and his white cell count is in the normal range. We have lost the mother ship and it has been replaced with a single pole again. Brendan has had some time detached from his machines and has been able to spend small amounts of time out on the ward balcony.

Unfortunately his fevers have continued and in the last two days he has become unwell again. The respiratory team have reviewed him today and have decided he needs another lung investigation. Brendan’s doctors think he has a lung virus which has been very difficult to diagnose. He continues to sleep a lot and feels unwell. He has no energy to play or interact for more than a very short while.

Brendan went to theatre this afternoon. The respiratory doctors found some “muck” in Brendan’s lung. This was removed and will be cultured. They also washed Brendan’s lungs out with saline water which will also be cultured to look for bugs. His doctors are hopeful that this will give us the answer as to why our little man is struggling to get well.

Kieran and Tara have settled into school and are making new friends. They have adapted to living in Ronnie Mac house and visiting the hospital several times a day. They enjoy the special dinners put on at the house by different companies. We have all met some lovely people at the house. Everyone has a story to tell and everyone is very supportive of each other.

Brendan is now half way through his recommended days in isolation and half way through his stay in Sydney. We hope to hear in the next 48 hours the results of his lung investigations.

Talk to you all again soon,
Love Anna