Brendan's Journey

Tuesday, August 07, 2007

JUST IN CASE WE FORGET
After a really happy week at school and the wish to try and attend school for a full week, the following week Brendan caught influenza type A. After a scarey few hours in the hospital emergency Brendan true to his form sat up looked at the nurse and said I'm hungry. Brendan spent a day and a night in hospital, on fluids and steriods. His doctors wanted him out of hospital as soon as possible. They are always concerned that Brendan will pick up another infection. Brendan spent a week at home recovering and is back to school part time. His energy levels have been really zapped and any small amounts of weight he has gained recently have been lost.
He loves to suck his tummy in and watch my reaction to his skin and bones.
Brendan is really excited about his up coming birthday, for us it is a amazing milestone. It will be a year since we were told Brendan has MDS. Adults with Brendan's type of MDS often only survive for about 12 months. I am certain that Brendan's joy of life gives him the energy to keep going. Today he is back at school with his friends having fun.
I'll post some birthday pictures soon.
Love Anna

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